Linguistic validation of cystic fibrosis quality of life questionnaires
نویسندگان
چکیده
منابع مشابه
Linguistic validation of cystic fibrosis quality of life questionnaires.
OBJECTIVE The purpose of this study was to validate the Portuguese translations of four cystic fibrosis quality of life questionnaires (CFQ). The first three were developed for patients with cystic fibrosis aged from 6 to 11 years, from 12 to 13 years and 14 years or more, while the fourth was developed for the parents of patients aged 6 to 13 years. MATERIAL AND METHODS The four CFQ translat...
متن کاملTranslation and linguistic validation of a disease-specific quality of life measure for cystic fibrosis.
OBJECTIVE To develop a conceptually and semantically valid English version of a French disease-specific measure of quality of life for children, adolescents, and adults with cystic fibrosis (CF). METHODS Following a backward and forward translation of the measure, 60 participants, including 20 children, 20 parents, and 20 adolescents/young adults completed the Cystic Fibrosis Questionnaire (C...
متن کاملEffects of Curcumin Supplementation on Quality of Life of Cystic Fibrosis Patients
Background: Cystic fibrosis (CF) is one of the most common genetic disorders in children. CF patients are susceptible to chronic lung infections and malabsorption. Although patient longevity is increased by multidisciplinary care, patients still suffer from respiratory failure and low quality of life. In this situation, CF patients tend to use comple...
متن کاملHealth-related quality of life in children with cystic fibrosis: validation of the German CFQ-R
BACKGROUND This study evaluates the psychometric properties of the Child and Parent versions of the German CFQ-R (Cystic Fibrosis Questionnaire Revised), a disease-specific measure of Health-Related Quality of Life (HRQoL) in children with cystic fibrosis (CF). Self-Rating is combined with proxy-rating by parents in the use of the questionnaire. METHODS 136 children with CF (6 - 13 years) and...
متن کاملQuality of life assessment in patients with cystic fibrosis by means of the Cystic Fibrosis Questionnaire.
OBJECTIVE To assess the quality of life (QoL) of patients with cystic fibrosis (CF) followed at a university referral center for CF. METHODS A cross-sectional study involving application of the Cystic Fibrosis Questionnaire (CFQ) and Shwachman score in CF patients between April of 2008 and June of 2009. RESULTS The sample consisted of 75 patients. The mean age was 12.5 ± 5.1 years (range, 6...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
ژورنال
عنوان ژورنال: Jornal de Pediatria
سال: 2006
ISSN: 0021-7557
DOI: 10.2223/jped.1463